gloshammer 12:13 Sat Jun 1
Non hodgkin's lymphoma
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Morning all
I was diagnosed with stage 3/4 non hodgkin's lymphoma yesterday. I already have a chronic pain condition along with absentia of common sense.
The oncologist says he wants to start chemo straight away but it may not work because of all the other meds I have to take (26 tablets per day and buprenorphine patch).
My question is, has anyone on here had NHL and gone through the chemo treatment, and what can I expect?
Although I own a healthcare company, we don't deal with anything like this and just getting a leaflet from the consultant doesn't instill confidence in me.
Please feel free to fuck me off at your own convenience
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Replies - In Chronological Order ( Show Newest Messages First)
Mad Dog
12:22 Sat Jun 1
Re: Non hodgkin's lymphoma
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Good luck with it fella
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Darlo Debs
12:31 Sat Jun 1
Re: Non hodgkin's lymphoma
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Blimey you are a walking branch if Boots. x
Good luck Glos. Hope your treatment works .
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WHAM BAMM
12:32 Sat Jun 1
Re: Non hodgkin's lymphoma
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Sorry mate cant help i'm afraid, but feel your pain. Recently had a Grade 2 sarcoma tumour the size of a small melon removed and half my pelvis. I hope you get through the treatment and any procedures buddy, fingers crossed for you.
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Darlo Debs
12:35 Sat Jun 1
Re: Non hodgkin's lymphoma
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Cancer is a cunt.
Hope you are getting on ok Wham.Bam.
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Darby_
1:01 Sat Jun 1
Re: Non hodgkin's lymphoma
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Terrible to hear. Good luck with it, chaps.
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13 Brentford Rd
1:01 Sat Jun 1
Re: Non hodgkin's lymphoma
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https://lymphoma-action.org.uk/support-you/community-forum
https://community.macmillan.org.uk/cancer_types/non-hodgkin-lymphoma/f/non-hodgkin-lymphoma-forum/123551/marginal-zone---looks-like-the-end-to-watch-and-wait?Page=1#1347387
All the best mate.
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Alan
1:11 Sat Jun 1
Re: Non hodgkin's lymphoma
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A mate had it years back. He's still with us, totally NHL-free.
Best of luck, hope it goes OK.
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Britannia Pub
1:11 Sat Jun 1
Re: Non hodgkin's lymphoma
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Not had it personally but have watched someone very close go through it.
It took a while to get the diagnosis during which time a lot of weight was lost. Oncologist reckoned would not last too long without treatment but concerned about the heart failing when the treatment started. I’m only saying this to indicate how ill the person was.
Chemotherapy started, no sickness (anti sickness drug), loss of hair, tiredness for a day or so after each chemo session. Recovery was slow but not as slow as you might think. Had to have an additional two rounds of chemo to wipe out the last of the cancer which was a bit of a kick in the bollocks but it worked. It took a little while to build the strength back up but one done many more years (over 10) were had living a full and active life.
Chemo does fuck your immune system up whilst you’re having treatment so keep away from people with any colds, flu, viruses, etc. You also have to try to avoid too much sun (no sunbathing).
I would say that a positive outlook helps. Once they thought it COULD be cured the outlook changed and, I believe, that was part of the reason for surviving.
Good luck with the battle and I sincerely hope you end up with a similar result.
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gooders
1:13 Sat Jun 1
Re: Non hodgkin's lymphoma
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Had the Hodgkin's variety 15 years ago now. Two stem cell transplants (second one from an Anthony Nolan stem donor) eventually got rid of it. Cured my athletes foot too which was a bonus.
Good luck with the treatment mate. The science has moved on a lot since then.
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Eastside surge
1:31 Sat Jun 1
Re: Non hodgkin's lymphoma
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Cant help you with that one I'm afraid but wish you all the best with your treatment mate
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Takashi Miike
1:32 Sat Jun 1
Re: Non hodgkin's lymphoma
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best wishes on getting better as soon as possible
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cholo
1:41 Sat Jun 1
Re: Non hodgkin's lymphoma
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I too have no idea but also want to pass on my best wishes, for what it's worth.
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Far Cough
2:04 Sat Jun 1
Re: Non hodgkin's lymphoma
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All the best with it
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arsene york-hunt
2:33 Sat Jun 1
Re: Non hodgkin's lymphoma
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I had a lump in my neck for which i was diagnosed NHL after a biopsy. Had it two and a half years and am on watch and wait. The lump has shrunk in the last six months and has almost disappeared. I go for six monthly check ups. My prognosis is quite good for my age and I'll probably die of something else before the lymphoma gets me.
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Crassus
2:35 Sat Jun 1
Re: Non hodgkin's lymphoma
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cholo 1:41 Sat Jun 1
Best wishes Glos
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OccupyGreenStreet
3:08 Sat Jun 1
Re: Non hodgkin's lymphoma
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All best wishes for a quick recovery Glos mate.
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paulon
3:15 Sat Jun 1
Re: Non hodgkin's lymphoma
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all the best fella
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GBHammer63
6:42 Sat Jun 1
Re: Non hodgkin's lymphoma
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Know someone who was diagnosed with same at the same stage, 20 years on he’s still ok, keep positive, very best wishes.
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bill green
7:23 Sat Jun 1
Re: Non hodgkin's lymphoma
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Best Wishes Glos and Wham Bamm
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Westham67
7:52 Sat Jun 1
Re: Non hodgkin's lymphoma
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All the best Glos and Wham
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